Friday, April 2, 2010

March was a long month!

Hi all.

The title says it all...Lee and I are both tired after this month! 

Since I blogged on the 20th, I've been to the hospital twice :-) and :-(

The first call to the hospital was on the 24th of March.  It was my FIRST call for lungs.  It looked like they had a "perfect match"!  Woo Hoo!!!!! The call came in around 8:30 a.m.  Lauren called... 
  1. Lee was doing dishes and I was in the shower when the house phone rang.  It wasn't in its charger and he couldn't find it in time.  No problem...they will leave a message.
  2. Then my cell phone rang.  Of course that phone wasn't sitting right by Lee in the kitchen either.  He stopped doing the dishes to look for the phone while he was thinking to himself "that's Amy.  If we don't answer the house she will often call the cell." 
  3. Lee answered the phone and it was Lauren.  They had lungs that looked like a match and we needed to come to the hospital.
Next thing I know, Lee has whipped the shower curtain open and told me I have to stop because we need to go to the hospital!  Dummy me...I was definitely not expecting a transplant call so when Lee told me that, I figured we needed to go to the hospital for him -- not me!  Maybe he cut himself on a knife while he was doing dishes?  But then Lee said Lauren had called.

I can remember telling Lee that I was going to finish my shower.  Easier said than done when you can no longer remember if you've rinsed off or not!  I finished, got dressed and we started trying to get ready to walk out the door.

Bear in mind that we had put together our "suitcase" to take to the hospital with us a long, long time ago.  It had water, books, puzzles, pillow, snacks etc.  Well...after almost five months we had long unpacked that puppy and never packed it back up.  So...we had to first find the bag and then put some stuff in it.  Finally off to the hospital.  I needed to call our friend Robert to ask him to check in on Missy because we didn't know when we'd be home.  No problem...he's a great friend to us.

I called Amy from the car and she was at work.  Her assistant went down and asked her to call me.  She called me back wondering what in the world could be so important to call her out of a meeting with her boss.  She too wasn't expecting a transplant call ;-)  Amy made it to the hospital with just a couple of problems.  Wouldn't you know it...her Blackberry died and she had to reboot it at home before she could leave.  Not to worry I knew we had lots of time.

Amy called Sharen and the two of them made their calls and texts to let people know we were on our way to the hospital.  They were both great.  Sometimes it can be a little confusing until you've made those call.  We may rethink how we send out the notices next time ;-)

Lee and I got to the hospital and were admitted to the short stay unit.  That's where the lung, kidney and liver transplant patients go Monday - Friday.  They go to the ER on the weekends.  The short stay was great!  The nursing staff was unbelievable.  I know I say that about everyone here at Duke but it really is true!  They are nice and everyone seems to have a great sense of humor.  That is a must-have in lung transplant!

Have I ever mentioned that I have totally crappy veins?  Well, I do.  The nurses in the short stay can attest to that!  It took two of them, working together, to get the blood draw to fill about 30 tubes.  I don't have a clue why, at this point in the game, they need to run all those blood tests!  God help us if they find something else now!

After the blood draw it was simply a matter of waiting to hear the outcome of everything.  Originally the donor surgery was scheduled for 1:00 p.m.  It then slipped to 3:00 p.m.  I don't believe the donor was at Duke because it wasn't going to be an immediate transplant.  For all I know they had to go out of town.  Duke docs fly all over for lungs.  That's one of the reasons that they have more transplants than most hospitals.  Duke has the funding to fly to more remote places to check on lungs and pick them up.  Lots of hospitals can't so they pass on those locations.  I just found that out recently when I was wondering why Duke got so many more lungs than other hospitals.  Here are a couple of pics we took - we were a little bored but excited and nervous too!

Waiting together!

Working while waiting!
All of the soda and water on the table are from Amy and Lee.  They later brought lunch up -- some really nice looking deli sandwiches.  Me...I had nothing.  I felt like the little piggy who had none!  That would be just fine if I ended up with lungs!

Did you notice the recliner that Amy's in.  She had that one and Lee had an even nicer one at the foot of the bed.  We were at the end of the hall in the Short Stay so they opened our glass door outward to create a little "room addition" for us.  It was really nice because we were right across from the rest room.  That will be the room I request next time ;-)

Time was going by slowly.  Of course it was.  This is a really big deal so every hour seemed forever.  We were all getting a little antsy so I called Lauren a couple of times that afternoon.  I wanted to know how things were progressing.  She had no update but she promised that she'd call the minute she heard.  She was on call that day and night so she would be hanging in with us!

Then, at around 5:00 p.m. we got the call from Lauren.  They found another big antigen that would have caused major rejection.  I think Lauren was as upset as I was!  So we headed home - after Lee and Amy fed me!

It turns out - sadly - that no one got those lungs.  They weren't viable enough for transplant.

No we just continue to wait.  It's hard to believe that I been on the list for five months already.  We've been here six months!  Wow!  We sure didn't think it would take this long when we got in the truck to drive out!  But thank God we did.  With my antibody problems we're better off here than anywhere! 

Oh, I forgot to show you Lee at the gym!  He does have a grimace on his face!  Lee made me laugh when we were driving to the hospital.  He said he just knew that as soon as he joined the gym we'd get a call!
 

So to close out the month of March...I had the "dry run" on Wednesday, the 24th.  I had a good breathing day on Thursday, the 25th - until that night.  Then on Thursday night and Friday, the 26th I was super short of breath.  It felt like I could only get air in about three or four inches into my lungs.  Long story short...I was back in the hospital from Friday - Sunday. 

They needed to give me some IV meds and then it was home and rehab.  They give you NO break from rehab!  I know in my heart that's a good thing but ughh!  We made it hospital free through the end of March!

Here's a pic of some burp cloths I made for Leah (Amy & Michael's family).  Daryl and Leah just adopted the most darling twin babies.  That's a whole blog in itself!  I'm really enjoying my embroidering and I'm also making some t-shirts with my heat press.

April is National Donate Life Month.  I sure hope each of you is an organ donor!  You can't take your organs with you and Heaven knows we need them here!   Anyway, off my soap box...I'm making t-shirts that promote organ donation.  This is what they have on them:  I've made six of them so far and several people at rehab want them.  Yay!

Enough about me, I know I've been blabbing here for way too long so I'm off to bed.

Happy, Happy Easter!

Love,
Lee, Wendy and Missy

Saturday, March 20, 2010

It's March...

Hi everyone. 

I know I haven't written in a long time (thanks Vanessa and Gordon for your reminders!!!) but I was going through a weird time when I was losing my confidence.

As you can see, we are both now smiling and we are moving on from my pity party!

I don't know if you can see the green tubing - instead of clear - that I now use.  It is for higher flows.  I don't know why you can't use the clear.  Who knows maybe it would blow out or something.

I'm sure you all want to know if the new drug worked.  Well, so do I!!!  They won't know until they run the HLA blood tests on April 14th.  Somehow I expected instant results.  That definitely got me down for a little while but oh well...if it works I don't care how long it take.

I saw Dr. Zaas on the 10th and he told me that he's keeping a lot of people really busy because of me.  Whenever a set of donor lungs that would be the right size and blood type for me becomes available they immediate ask for blood to be shipped for a quick HLA analysis.  There's always that hope for a perfect match.  I sure know they are trying their best. 

I'm feeling pretty much OK.  I have good days and I'm glad for them.  I now have more "not very good days"  where it's a chore to go to rehab and it's just plain hard to exercise.  But Duke doesn't care if it's hard...they just care that you do the best you can.  Whatever it takes to keep your strength up.  I do sometimes wonder if this exercise is using up all my muscle and leaving me with nothing in return!  I'll have to ask one of the rehab staff.  My next appt with Dr. Zaas isn't until April 14th.  If anything comes up before then I let everybody know.

This is the Fitness Center. It shows the track that we walk around every day. Walking is absolutely the hardest of all the exercises!



Oh! I almost forget to tell you that Lee has now joined the gym. He can work out with me.  I use the word "can" loosely because Lee didn't want to go to the gym.  So...I just signed him up and paid for it.  I knew that if I paid for it then he'd go!  I had to drag him in (a little kicking and screaming) but I think he may like it a little. He was really surprised after the floor exercises. They kicked his butt and he had to admit it because he had a surprised look on his face ;-)

Now on to the other part of our life!

We finished another puzzle.  Lee actually did most of it and that's not easy when you're color blind!  He goes pretty much by shape and picture but he can't see the blues and greens.  I guess that explains why it takes him longer ;-)

Here are a couple of pictures from Amy's friend Crystal's baby shower.  Isn't the cake cute?

 And here's a picture of Crystal and Amy...

They've been friends for ages and Crystal was Amy's maid of honor in her wedding.

Amy and I went to our weekend scrap book crop.  It was a lot of fun but it will definitely be the last weekender until after transplant.  Sometimes it's a lot of work to have fun!
 


Oh!  Here's a picture we haven't seen since we got here...commuter traffic!  It was really backed up but it turned out there was an accident on the other side of the road.  Otherwise it would be the normal - not crowded - traffic.
Below are a couple of pictures of Lee and Missy.  Lee does a lot of the cooking now because for the most part I don't have the energy.  He's already told me that he knows I'll want to take over post transplant.  Really?

Isn't Missy cute?  She sure loves Lee.  The other day I offered to take Missy out for a walk and she wouldn't go unless Lee went too!  Spoiled rotten!!!!!!

This is a picture of our friends Susan and Don.   Susan had a single lung transplant the first part of January.  She looks great and is doing great.  They are really good people and Lee and I are both glad we met them!



Lee and I drove up the Winston Salem so that I could go to a baby shower.  We drove by some interesting property.  Wonder what this would sell for?

And then there's the house that offers separate mother-in-law quarters.  I hope Amy and Michael don't snatch this one up!

Honestly though...these are really old (no kidding!) and it amazes me that they are in the middle of a pretty well developed area.  It's sort of historic.

On to another happy note...Spring has finally arrived.  The other day I saw robins playing with each other and singing.  We hear birds singing all the time now.  Lee said he wasn't sure NC had birds because he didn't hear them when we arrived.  I think they'd flown south for the winter.  They would have to leave NC if they wanted mild weather because we all know NC is not a "mild southern state".

Lee and I went to Lowe's Hardware the other day and purchased a hummingbird feeder.  It is proudly hung on our patio.  Now we just need the birds!

I took some pictures from our patio of the spring look.  We still need the leaves on the trees but that will be here really soon.


I wish I had more information to tell you all but I just don't right now. In a way that's good...since we don't know if the drug worked, I don't want to tell you that I'm getting really really bad!

That is just my way of making it "the cup is half full"

Love to all and happy spring!

Lee, Wendy and Missy

Friday, March 5, 2010

Bortezomib...my new friend?

Two weeks ago - at the Tuesday meeting, the HLA docs said my anti-bodies hadn't gone down at all.  Dr. Palmer then asked if we use Bortezomib and the antibody counts go down will the group feel comfortable to open up to donor pool based on reduced numbers.  Good that the team voted "yes".

The best news I received on the 19th of February was that my insurance company approved the use of Bortezomb!  I am SO blessed...most companies would just say "that's experimental for lung transplants so no coverage"  Not my insurance -- they just asked for letters & info as to why Duke wanted to give this stuff to me.  Then they said yes!

I started the first of four doses of Bortezomib on the 22nd of February.  It was very fast and I was done with the first treatment in no time.  Side effects were hard to figure out...it took me two doses before I realized that it makes me really tired and dizzy and feeling sort of sick to my stomach.  The good thing is that the tiredness lets up a bit and so does the dizziness.  The stomach stuff is just a little wierd. 

I've been having weekly blood tests to look at my platelet count.  I had one yesterday and don't have the results back but I'm sure it's just fine.  The test last week showed the platelets in the normal range.

I have one more treatment - next Monday - and then I don't know what will happen next.  I'm not even sure the docs know what will happen next since they don't have any history to follow protocol.  I guess we are making up the protocal as we go along ;-)

I've asked several times how long it will take before we see any results (reduced antibodies) but no one has given me an answer.  I don't know that the team knows!  I hope they get some results soon because between the IV treatments and the blood tests my arms are a roadmap of bruises.  It's not a really good look - especially because they've started poking my hands now.  That doesn't feel good and it too bruises. 

I'll let you all know when they find some results.

Now on to other news...
  • my friend Susan (transplanted in early Jan) was released to go home.  She lives in North Carolina (about 3 1/2 hours from Duke).  Susan is doing super!  I miss visiting with her - and her husband Don - but once transplanted Lee and I can go visit them!  They'll have dinner with us when they need to come back for checks at clinic.  Susan had high antibodies too.  Her's were around 70 and they found a perfect match for her!  There is hope!!!
  • my friend Karen was just called for her transplant on Tuesday.  She too had antibodies and they also found a match for her!  Karen is still in the hospital but she was up and walking on the day after surgery!
  • I'm starting to feel a little down because everyone is being transplanted but me.  Duke has transplanted over 50 people since Lee and I got here in late September.  I just want to be next!!!  Okay, I know that sounds really selfish - and it is - I'll suck it up and get over this feeling.  In reality, Lee and I are grateful to be at Duke because the CA hospitals would have likely have given up after rituximab didn't work, if not sooner.  I would have been sent home to die ;-(  I know that doesn't sound nice but it is reality!  Given that scenario...I'm so glad Duke is still trying and I know for a fact that they are as anxious as we are to get me transplanted!!!
  • Sheila (rehab - transplant liason) told me about one patient that had higher antibody numbers than me.  This was before the days of rituximab.  The patient lived in South Carolina and after four months the team felt bad that she was having to spend all the out of pocket costs to wait for a transplant that might never happen.  Her husband had needed to go back to SC for work and it was just she and her daughter at Duke.  The team told her that she might not live long enough to get a "perfect match" so if she wanted to just go on home they would respect that.  The patient said she would stay at Duke.  It took quite a while but she did get her match and is still doing fine!  THERE IS HOPE!!!!
  • It snowed again this week - Ugh!  I wonder when Spring will hit here.  I think we've had more snow than rain...that's weird.
  • I've been embroidering some orders - b-ball caps and burp cloths.  That's always fun!
  • Did I already tell you guys that we found a new church to attend?  It's really nice and - very important - the people are really nice!
  • Lee and I miss our friends and family in CA and wish they could all come out to visit!  We have a queen sized air mattress and a couch for sleeping!  We'd love to see our CO family out here too!
  • I'm heading to a weekend scrapbook crop with Amy.  For the last two years I've been flying out to go to it so this will save some money.  It's really fun and I'd love for Vanessa and Sue - and any other scrapbookers - to come next year!  We could have our own table!  I have more pics but I'll show them in another post. 
I hope everyone is doing well.  Please let us know what you all are doing.  I read updates on facebook for a lot of you about what all you are doing.  I just keep reminding myself that Lee and I can do those things too once I've had my transplant!!!!  It gives me incentive to keep on plugging along!

Love you guys,

Lee, Wendy and Missy

Thursday, February 11, 2010

Anti-Bodies Are Not My Friends

Well it seems that my antibodies weren't affected at all by the Rituximab and the IVIG drugs I was given to get rid of them.

That's just not a good thing because I'm getting sicker and my donor pool is still miniscule.  The docs have been watching my antibody levels for several weeks.  This last Tuesday, at their team meeting, they decided it was time to stop "watching" and start something new.

Dr. Palmer (another of the team) and Dr. Zaas came up a new game plan...a new drug...Bortezomib.  Aren't these just great names?  I wonder why they never make a drug that people can pronounce...maybe it won't be as effective! ;-)

The short story on Bortezomib is that it's a pretty new drug.  It's in a family of its own. 

It is a cancer drug that fights multiple myeloma (MUL-tih-pul MY-eh-LOH-muh) -- "A type of cancer that begins in plasma cells (white blood cells that produce antibodies)" and mantle cell lymphoma (MAN-tul sel lim-FOH-muh) -- "An aggressive (fast-growing) type of B-cell non-Hodgkin lymphoma."

The docs like this drug for a couple of reasons.  It fights the cells that create my antibodies and it concentrates on B-cells which are the big problems for me.

The iffy part about taking this is that it hasn't ever been used on a lung transplant patient.  Now that might make some of us step back and say "Wait Just a Sec" but what the heck...there's a first time for everything!

There are several side effects but the ones that Dr. Palmer wanted to discuss with me are:
  • Peripheral neuropathy: decreased sensation and numbness and tingling of the hands and feet.
  • Nausea and vomiting
  • Bone marrow inhibited
These side effects hit a lot of the patients so we want to hope that I'm going to be one of the few that don't get any side effects.  Apparently neuropothy can be pretty painful and is the most common side effect.  Hopefully if I get it it's not too bad.  Nausea and vomiting can be treated with medication - drugs for drugs ;-) 

Inhibited bone marrow can become a very big deal because I could end up with a low platelet count, low red blood cells, and low white blood cells.  That pretty much translates to my body becoming a neon sign to attract any infection passing by.  I wouldn't have any resistance.  Doctor Palmer said that if my platelets got too low they might hold off on another dose until the bone marrow could produce some more or they could give me a transfusion.  OK this is starting to become a bigger deal to me too!

In case you're wondering why anyone would use this drug  here's the answer:

We have to do something to enlarge my donor pool.  Right now they have looked at potential lungs but none of them are ever OK with my antibodies.  I'm getting sicker and I will continue to get sicker.  If we choose not to try this then I would just wait and pray for a "perfect match" to my antibodies.  While I do pray for that, I believe I need to be proactive in my treatment. 

Dr. Palmer is concerned that if I choose the wait and watch approach I may not live long enough to find a donor match.  Now that's enough to get my attention ;-)

I have complete faith in my doctors.  They are educated and caring.  Between them, there is a LOT of experience sitting around that table every Tuesday.  They proposed this drug to me because it is basically the only known way that I might be able to reduce my antibodies.  I need to do everything I can to get rid of those things!

The major obstacle to this undertaking could be the insurance company.  The approval request to give me the drug has been submitted.  The insurance company didn't outright refuse to pay for it - they want some more information to explain why they want to give this drug to a lung transplant patient.  The fact that they didn't deny payment is a really good sign to me!  Let's all pray that they will cover the cost of the drug!

Anyway that is it in a nut shell.  I need to get rid of the junk in my blood so that I won't reject donor lungs!

I'll keep you posted when I hear from the insurance company and when I hear more from the docs.

Take care and Happy Valentine's Day to everyone,

Love,
Lee, Wendy and Missy

Friday, January 29, 2010

Some January pics

Hi again.

I wanted to share some pictures of our month.

I'm crocheting beannies for premie babies at Duke's Neonatal ICU.  It's my way of "paying it forward".  It's also relaxing and a break from other stuff.  Lee wondered if he could learn to do it...nope!


This is the remote control truck that Lee got for Christmas.  He really wanted that thing and I have to say it's just not that amusing when it runs into me by "accident" ;-)  I guess it's better to go after me than Missy...she's scared to death of the thing-  that's our brave baby!

Yes, I have been known to walk Missy too.  Look at Missy's face...she knows it cold out there!  Hey Brandon...do you see the picture on the end table?  We still keep it out even though you've grown some - more like lots!

This is the 1000 piece puzzle that Lee and I put together over Christmas.  We both thought we'd never finish it but at least it had all the pieces!
















That's it for January! 

Love you guys,

Lee, Wendy and Missy

It's the end of January

Hi all.

We've made it through another month.  It's been a good month - all things considered.

Since the first of the month my breathing has gotten more difficult.  I went to my clinic appointment last Wednesday and had my usual tests (blood work, PFT, ABG).  The PFT, as I mentioned in the last post, was quite a bit lower.  I didn't think it was that much worse but the "brains that be" said it was.  I made a chart of the changes since October:


The blue line represents my Forced Expiratory Volume in 1 Second.  The FEV1 shows what percent of my air I can exhale in one second.  Most people can exhale 75% to 85%.  My percentage has gone from 39 to 28 since the middle of October.  Apparently this explains why I'm struggling at times.  The FEV1 is really important to the docs.

The FVC is a measure of lung volume.  This one isn't as accurate as the FEV1 but they still look at the numbers.

As you can see the percentages have dropped and that basically means I'm moving along my timeline of the "window for transplant". 

I met a new doctor at clinic because Dr. Zaas was in Cancun...nice for him!  I met Dr. Snyder.  She said she had met my x-rays and cat scans in the Tuesday meetings and it was nice to put a face to a set of lungs! 

She seems like a nice doctor and if Dr. Zaas is comfortable with her filling in for him then Lee and I are comfortable with her also.  We talked with Lauren (Khara's parter transplant coordinator) before Dr. Snyder came in.  Lauren really wants to get me transplanted soon.  She is really hopeful that the blood tests I had done that day will reflect lower anti-body numbers.  She was glad that they were at least looking at potential donors...she seems really hopeful.  Whenever they have a potential donor that is at Duke, they run a cross-match with my blood and the donors blood (they have my blood on file).  So far the tests have shown positive for antibodies -- here's a pic of one of the test results:

Posted by Picasa
As you can see, my "T" and "B" numbers are both showing positve with high numbers.

As soon as the results would show negative then we would have a viable donor. 

THAT DAY WILL COME!









So that's about it...my numbers on the UNOS score went up - just as expected - and everything else stays the same.  Still working out at rehab and still hanging around with Lee - both are good ;-)

On a lighter note...it is snowing big time right now.  Lee and I went to the movies this afternoon (thanks a bunch Gordon and Ronda and Keith!).  We made it home shortly after it started snowing.  Here's a picture I took after 2 1/2 hours of snow...
Isn't it pretty?  This is outside our building in the apartment complex.


The next one shows right in front of our patio.

Notice how they salted the sidewalks. 
This brings us current so it's off to bed for me and love to all of you!

Lee, Wendy and Missy

Thursday, January 21, 2010

Hanging in there

Hi everyone.

I don't really have any new info except to say that my saturation numbers are going down so my oxygen numbers are going up.

For some reason right after the first of the year my numbers went south - sadly not to the Caribbean ;-)

Now I need 3 to 4 liters of oxygen at rest and 6 liters for walking or other exercise.  I was on 2 at rest and 3 for walking.  I get really short of breath doing some of the simplest things so it has become a real pain.  When I walk from the bedroom to the kitchen to my embroidery room my sats drop to the 80s...ok, time to sit down.  But, I have to walk out of my embroidery room and into the living room before I can do that.  The sats stay down just that much longer :-(

In an organized world I would increase my oxygen level every time I walked around the apartment or took a shower or cooked or anything except sitting.  We are not that organized ;-)  Lee or I would be running back and forth to the oxygen concentrator every five minutes.  While that might be good exercise, it would get really boring and we'd all go crazy!  So at home I try to walk slowly (not easy for me!) and do a little bit at a time (also not easy!).  By trying to do this stuff my sats don't drop as often which is a good thing.

For walking I can't go any lower than 6 liters or my number drop really fast.  I can walk across the room but I can't walk very far without increasing the level. 

Lee and I went to Winston-Salem this weekend for a birthday lunch with Michael's family.  They celebrate all the family birthday's in the month or they just celebrate life if there aren't any birthdays.  January was Lee's b-day month and that was nice.  Two things became apparent at the lunch... First, I could potentially run out of oxygen (at my new higher level) and not have enough back up tanks in the car.  That would be very scary on a weekend day.  Second, no one in the family eats a lot of sweets.  Lee wanted to bring his favorite chocolate cake from Costco (all chocolate with fudge filling and fudge frosting) and we ended up bringing 1/2 of it back home with us.  That's the last thing we need after the holidays!  We took a big piece to Robert - our friend who takes Missy out when we are gone for more than six hours and we ended up throwing out a big piece.

Because we are concerned about running out of oxygen when we are away from the house, the pulmonary people gave me an "oximizer".  It's a tubing that has a reservoir pendant that holds extra oxygen.  That way when I breathe in I'm actually getting 50 percent more oxygen.  Because of that, I can set my tank on 3 and with the oximizer I'll be getting the equivalent of 5 liters.  When I'm walking I can set the tank at 4 and get 6 liters worth of oxygen.  That will make my tanks last longer which will be a good thing!  It's a little bit noisy but it will be great for walking and travel.

Back to my dropping sats...I spoke with Khara (transplant coordinator) and  she made note of it and talked to Dr. Zaas about it and it basically boils down to I getting sicker.  Duhhhh.  I knew that and I'm not a doctor.  They have sort of been expecting this dive and I think they thought it might happen sooner.  I still do rehab every day and they don't cut you much slack there.  I still do the floor exercises and the walking and the bikes and the weights.  I have cut back a couple pounds on the chest press and the leg lift machines but other than that everything has stayed the same.  It just takes me 3 1/2 hours instead of 2 /12 hours.  Lee also drives me most of the time.

I haven't had a lot of extra energy lately so Lee drives me to rehab.  Anyone who knows me well knows I must really not feel good to have Lee driving me ;-)

I go see Dr. Zaas next Wednesday and that's when I'll have another Pulmonary Function Test and blood test.  I expect the PFT will be a bit worse than last time (and boy that's relative because it's always bad!).  This blood test will show the HLA lab (anti-body lab) if my anti-bodies have really gone away.  If yes then they can change my numbers with UNOS.  The lower the anti-body number the easier to find a donor match.

Well that's it for now because I'm going to bed.

Love you guys,

Lee, Wendy and Missy